Patient Interview - A life with PV
PV isn't a one-way street for me, but more the start of a new journey. And, as is the case when travelling, you don't just learn about new places. I've also learned a lot about myself. What used to get me worked up is no longer so important. Today I go through life with greater awareness and can now say I really live a lot more in the present.
We talked with Ulrich Hufnagel about how he manages life with PV and how the disease has changed his perspective ever since.
Mr. Hufnagel was diagnosed by chance in 2019 after a dental operation.
We want to thank Mr. Hufnagel for sharing his personal story and hope it helps other patients in their journey
Interview in German with English subtitles
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From the interview ‘My life with PV’
‘The MPN network gave me the first real information, primarily an exchange of experiences with other fellow patients, but mainly information about new therapies and new drugs on the market.’
‘The whole perception of the disease also changed when I became the manager of my own disease.’
‘Of course, the whole thing stands or falls with the haemato-oncologist. They need a certain level of experience, that's very important. So I asked my haemato-oncologist relatively early on how many patients he treats with polycythaemia vera.’
‘PV is not a one-way street for me. For me, it's more like the start of a new journey. And as is the case when travelling, you don't just learn something about foreign places, I've also learned a lot about myself. So the things that used to annoy or stress me out are now rather insignificant for me. I now go through life more consciously and I can say that I now really live more in the here and now.’