28.02.2023 • Online
Webcast:
Rare Disease Day 2023 - Living with a rare disease
AOP Health's Rare Disease Day event focused on the importance of psychosocial care and clinical trials.
Watch the presentations and interviews in German with English, Italian and Spanish subtitles!
Date: 28 February 2023
Venue: Billrothhaus, Frankgasse 8, 1090 Vienna
Moderation Mag. Sabine Nikolay
Peter Löffelhardt - President Global MPN Scientific Foundation
“The long road to diagnosis”
- Webcast - Lecture in German
- Webcast - Lecture with English subtitles
- Webcast - Lecture with Spanish subtitles
- Webcast - Lecture with Italian subtitles
Short Interview
Dr. Maria Resch - Clinical and Health Psychologist
“Why is psychosocial support important especially for patients with Rare Diseases?”
- Webcast - Lecture in German
- Webcast - Lecture with English subtitles
- Webcast - Lecture with Spanish subtitles
- Webcast - Lecture with Italian subtitles
Short Interview
Eva Otter - Vice President PH Austria & President of PHA Europe
“Psychosocial support from the patient's point of view”
- Webcast - Lecture in German
- Webcast - Lecture with English subtitles
- Webcast - Lecture with Spanish subtitles
- Webcast - Lecture with Italian subtitles
Short Interview
Dr. Tanja Stamm - Institute for Outcomes Research, MedUni Vienna
“Challenges in study design for Rare Diseases”
- Webcast - Lecture in German
- Webcast - Lecture with English subtitles
- Webcast - Lecture with Spanish subtitles
- Webcast - Lecture with Italian subtitles
Short Interview
Elena Greschner - President MPN Austria Support Group
Short Interview