Young Patients Talks

Living with a rare disease like an MPN can feel isolating. Today, during MPN Awareness Month, we invite you to listen to Judit speak about her concerns & coping strategies for living with Myelofibrosis, a rare bone marrow cancer.

Judit emphasizes the importance of seeking support through young patients groups, and taking care of her physical and emotional well-being.

Watch Carlota, a young MPN patient who received her diagnosis at age 16.

Carlota says that "Although the diagnosis is scary at first, there are people who can help us - experts, family and friends, that make it possible to live a normal life."

Hear what Carlota and young patients have to say about living with an MPN!

Myeloproliferative Neoplasms (MPNs) are a group of chronic, rare diseases of the blood-forming cells in the bone marrow, which are considered blood cancers.

Hear what Paula G has to say about living with an MPN and her hopes for the future!

Paula C, a young MPN patient, encourages others living with an MPN:

"Make the most of the moment and don't let the disease drag you down."

Living with a MPN diagnosis can be very challenging, especially if that diagnosis occurs in very young person. 

Listen to what Paula C talk about living with an MPN!

As Dr. Sobas, PhD, Wroclaw Medical University notes: "MPN is mainly a disease of elderly patients and the research is mostly dedicated to this group of patients. Not yet to younger patients."